Alot has happened during the last 5 chemo treatments (May through August). I am about to start my twelth and final round of chemotherapy next week. My lethargy has progressively gotten worse over the course of treatment. Also my lack of appetite has still been an issue. Still, at each doctor’s visit the MRI results have not changed-the brain scan looks the same showing what the doctor suspects as scar tissue (although he says there is always the possibility that it is remaining tumor). My doctor said that it will probably be 2 months post treatment when I will notice a difference in my energy level, but it will still take much time to get back to feeling normal.
Despite my symptoms I still have gotten some physical activity including some short bike rides and running two 5K’s. One of the 5K’s was for the American Brain Tumor Association which I ran with my mom, wife and son at the L.A. Arboretum. I have been coordinating with the Camarillo Kiwanis Club in putting on a 5K in Camarillo to support Brain Tumor research. Luckily I have had a lot of contacts and support in making this possible at the end of spring 2014.
After a full year of being off work I started back at AppleOne in June. Luckily my employer has been flexible in allowing me to have a shortened work day (because of intense fatigue in the afternoon) and working from home during my chemo and recovery week. When my wife had to return back to work in August after her summer break we had to find a school/day care for our son. Luckily we found a nice Montessori which is down the street from my work.
During the summer we had many family and friends visit us from out of town. We also made a couple trips down to San Diego to visit with my grandmother (10 days before she passed away) and to go to her funeral services a month later during the weekend of what would have been her 91st birthday.